▲ ▼ Self reporting symptoms of long COVID
While second/third wave of COVID-19 has started to take its toll globally, horrors of long term symptoms from original COVID-19 survivors are coming to light.
Symptoms ranging from breathlessness, fatigue to damage in brain tissue from MRI scans have been reported by several COVID survivors including those who were asymptomatic initially and those who survived COVID without any hassle.
Since long term effects of COVID are just starting to being explored by researchers, medical practitioners are under-equipped with data to help their patients reporting symptoms of their long COVID. Self help online forums are reportedly playing a huge role for these COVID survivors to discuss about their persisting symptoms.
A dedicated platform to self report long-term COVID symptoms with provisions to intuitively collect scientific data would be invaluable to researchers and scientists around the world.
A dedicated platform to self report long-term COVID symptoms with provisions to intuitively collect scientific data would be invaluable to researchers and scientists around the world.
I've always wanted to see actual data including blood types, since earlier this summer there was a supposed link between the severity of the effects of COVID and the person's blood type. Would be awesome to have this database and be able to see graphs by blood type, age, etc. Although, how do you validate that the person actually had COVID?
True, I'm interested in getting some real data about the blood group and COVID-19 as well; I even planned to contribute data on it - https://news.ycombinator.com/item?id=23464244 incase me/my family got infected. Fortunately, it hasn't happened so far and I would like to have it that way!
Also in question are the true impact of Vitamin-D/C on immunity against COVID-19, it's now being treated as common knowledge by the medical fraternity in my region that Vitamin-D/C boosts immunity against COVID-19, so much so that the Vitamin-D/C tablets are being distributed as 'festival gift' via Public Distribution System.
https://long-covid-registry.vercel.app/
I'll work on this more later, it doesn't submit anything or show data yet, but what do we think of this so far?
Simple and intuitive; seems promising. But to get it on the front page of the search engines it needs a forum for discussions on the topic.
To address this, focussed effort is needed for informing COVID survivors, Long-COVID patients, Researchers and Doctors about this project.
Yeah I don’t think a forum is necessary. Forums like Reddit subreddits (e.g. /r/covidlonghaulers) are already comfortable/available to folks. Didn’t want users to have to create an account just to take a survey. Always a huge blocker for me personally.
I shared my site on /r/covidlonghaulers and got 10+ folks to fill it out. I’ll work on options to filter the data and be able to download it.